Two brothers have shared their experiences of being diagnosed with a rare form of dementia in their twenties.
Brothers Jordan and Cian Adams, aged 28 and 23, saw their lives dramatically changed after discovering they had inherited frontotemporal dementia (FTD) from their mother.
Frontotemporal dementia (FTD) is a rare type of neurocognitive disorder that can often be hereditary, typically due to a single “faulty” gene passed down from parent to child.
This condition is referred to as familial frontotemporal dementia (FTD), affecting 10 to 15 out of every 100 individuals diagnosed with FTD, according to research conducted by Alzheimer’s UK.
Following the death of their mother, Geraldine, from the condition in 2016 at the age of just 52, the brothers and their older sister, Kennedy, decided to pursue genetic testing for the disorder.
Kennedy eventually discovered that she had not inherited the condition, while Jordan and Cian received the heartbreaking news that they were carriers of the gene and would likely develop frontotemporal dementia later in their lives.
